Malaphor: Digital Health Law in Canada

health + tech in law = mixing chalk + cheese

UN Special Rapporteur makes health-data protection recommendations

In 2015, the Human Rights Council of the United Nations appointed its first Special Rapporteur on the right to privacy, Professor Joseph Cannataci. Under his mandate, Prof. Cannataci produced this Recommendation for health-data protection (the “Recommendation”), along with an Explanatory Memorandum (the “Memo”). (See also this page for other related documents.)

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It’s my health data!

In my last post, I wrote about some issues surrounding health data and data sets in the context of AI. Since then, I saw a couple of interesting items with respect to health data “ownership” that I wanted to share.

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Personalized medicine in the age of Big Data

Intuitively, medical treatment that is tailored to our individual physical needs makes sense. For example, the best treatment for me for a particular condition may not be the best for you.

This is the goal of personalized medicine. The scope of personalized medicine can be fuzzy, but the Centers for Disease Control and Prevention (CDC) states:

Precision medicine, sometimes called personalized medicine, is an approach for protecting health and treating disease that takes into account a person’s genes, behaviors, and environment. Interventions are tailored to individuals or groups, rather than using a one-size-fits-all approach in which everyone receives the same care.

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